Tuesday, July 2, 2019

Diagnosis

We got our diagnosis today - a day early.  Ava has a stage 3 germ cell tumor in her abdomen.  We will begin Round 1 of  chemotherapy tomorrow, for the next 5 days.  She will be inpatient in the hospital and stay until they have a clear read on how she has reacted to the chemo.  We are unclear how long she will be in the hospital, and if/when we will be able to come back to our "home" here at Tri Delta.  The chemo is also necessary because it appears that there may be some spread to Ava's lymph nodes, but that is currently an unknown. 

The goal is to shrink the tumor before they attempt surgery, but it is in her future.  

There are quite a few unknowns - those are the basics that we heard today.  There is no timeframe for when we'll be home in East TN as a family again.  It all depends...

Lily and Bo and the three grandmas are here with us and our plan for a touristy holiday around Memphis has transformed into a different shape.  We hear we can see the fireworks from her room in the hospital, so that's fun.  It sure was good to hug our other babies and our mamas today.

Thanks for your prayers and support.  We need it.

Be sure to check out our facebook group: Ava Fierce and Brave and our Instagram account @avafierceandbrave

Our friends are selling tshirts to support Ava - maybe I'll get a link to that on here when I get a chance.  And the Clothesline in JC is donating all profits to us on Sat. July 6th.  We are surrounded by amazing community.  Thank you all.

- Casey, Holly, and Big Bo

17 comments:

  1. Praying for ya'll. love you girls. Gene Clark

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  2. Oh my. Oh my heart hurts so much for you all. We are all praying SO HARD. You’re gonna beat this thing, Ava.

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  3. NOTHING is IMPOSSIBLE WITH the LORD. We will continue praying knowing HE is watching over Ava. LORD JESUS touch her little body. Let YOUR presence be felt knowing all this is in YOUR HANDS. WE love you all

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  4. Abundant love and prayers for our fierce and brave Ava from Reagan, Rylee, and family back home. ❤️

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  5. You are in my thoughts and prayers.

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  6. How am I just seeing this...praying fiercely for Ava and all of you!! She is so brave!! I’ll find the link for the shirts!!

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  7. Sending oodles of love and healing mojo your way.

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  8. Sending love and prayers to you Ava. You got this girl !
    Love, Jen, Ellie, Brandon, Eli

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  9. Casey/Holly! I am praying hourly for all the needs that you and Ava have in these days. As soon as I find my polish, I will permanently paint my pinkie as a reminder! I am thankful for the chance to meet your precious girl in March! ♥️♥️

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  10. You know what you are dealing with now. As Sun Tzu said: "If you know the enemy and know yourself, you need not fear the result of a hundred battles."
    <3

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  11. Holding Ava and you and the whole family in the light. �� Sending love!

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  12. Holly and Casey, I am praying for all of you, that you would sense the Hand of God guiding you through this, that His love would hold you firm, and that your eyes would behold all that He has planned for your amazing little girl! Just know that you are all loved.

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  13. Love and light from our hearts to yours dear ones.

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  14. Praying, and hugs from Loren and Lori

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